Courtesy of WMU Athletics:
KALAMAZOO -- This weekend across the Central Collegiate Hockey Association, the coaching staffs of all 11 teams will band together to help raise awareness for Duchenne (pronounced doo-shen), muscular dystrophy.
The Ice Duchenne project is spearheaded by Western Michigan assistant coach Rob Facca, whose five year old son Louie has been diagnosed with Duchenne’s.
“Duchenne is a devastating disease,” said Facca. “Right now there is no cure but the research looks promising. Cure Duchenne is leading the effort to fund and accelerate research to help us get closer to finding a cure.”
Duchenne’s muscular dystrophy is the most common fatal genetic disorder diagnosed during childhood, affecting approximately one in 3,500 boys worldwide. The disease results in the degeneration of muscle and affects the legs, heart, lungs and brain. While there is no cure, aggressive therapy and treatments have helped Louie and many boys around the world slow the effect of the disease.
This year Ice Duchenne is joining forces with CureDuchenne. CureDuchenne is a national nonprofit organization located in Newport Beach, Calif., dedicated to finding a cure for Duchenne.
CureDuchenne has garnered international attention for its efforts to raise funds and awareness for Duchenne through venture philanthropy. With the help of CureDuchenne’s distinguished international panel of Scientific Advisers, funds raised by CureDuchenne support the most promising research aimed at treating and curing Duchenne. To date, seven CureDuchenne research projects have made their way into human clinical trials – a unique accomplishment as few health-related nonprofits have been successful in being a catalyst for human clinical trials.
The Bronco hockey team is selling raffle tickets for a drawing for an autographed Steve Yzerman jersey. Tickets can be purchased at the WMU Hockey Office at Lawson Ice Arena during the week and then up until the end of the second intermission at Saturday’s game against Notre Dame. Tickets are $2 each or three tickets for $5. The winner will be announced during the third period but attendance at the game is not required. If the winner is not in attendance he or she will be notified by phone.
Donations in honor of Louie and Coach Facca can also be made at CureDuchenne.org.
WMU asks that when fans and media utilize social media to help spread the word about Ice Duchenne that they use #NoBadDays and #IceDuchenne2013.